Tuesday, May 22, 2007
Back to school
Jamie went back to school today (yay!). Thanks Kerry :)
She should have been back much earlier, but she didn't want to. She quite enjoyed staying home. But over the weekend she was invited to a school friend's birthday party and that really motivated her to go back to school.
She still didn't feel quite comfortable about the break time at school, so she wanted me to pick her up before morning tea break this morning. She just wanted to go there for a short while. But when I picked her up, she was quite happy there and wanted to stay longer. She asked if she can go to school for the whole day tomorrow...
The hospital has sent a community nurse to the school to talk to the staff meeting and also to her class. So they're all well prepared... Jamie felt very welcomed back to school.
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Susan @ 7:11 PM
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Saturday, May 19, 2007
The battle goes on
Since the blog post of the bone marrow test result, quite a few people have asked me the question, so is she healed? will the treatment stop,etc.?
Well from the doctors' point of view, it's an expected result for this stage. It should happen for most patients to have the cancer in remission at this stage of treatment. But they'll not say a patient is cured until the cancer is clear for at least 5 years. The treatment plan for Jamie goes on for at least 2 years.
I guess that in some way cancer's a bit like head lice. It's easy to get rid of live head lice after some brushing and combing, but then the battle comes in dealing with the nits. If the nits are not completely dealt with, then the hair might appear to be clean, but after a while the lice will come back.
So likewise in remission doesn't mean the finish of treatment. The treatment will still go on to deal with the hidden nits of cancer.
She's in treatment protocol 1, which is nearly coming to an end. Then she'll start another block of treatment, which includes staying in the hospital for 4 days or so every fortnight for 4 times.
Jamie's been coping quite well. She's been doing heaps of things, like walking around on roller skates, falling off Billy cart, walking around shopping centres, running, jumping with the eye toy game,etc. She's been quite cheerful most of the times.
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Susan @ 11:50 AM
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Wednesday, May 09, 2007
Neutrophil
It's been quite good these last few days, although I felt a bit lazy about blogging.
Jamie's been doing heaps of things, going out shopping, library, park, feeding ducks at the lake, restaurants, reading heaps of books, doing school works...... She's got heaps of energy. She doesn't sleep during the days, and she's always the first one to wake up in the mornings.
We went to hospital on Tuesday this week, and then the nurse comes every day till Friday. Her platelet continued to be good, and her white cell and Neutrophil count had a big jump. Her neutrophil count had been between 0.3-0.8, and yesterday was 3.1, white cell from previous 1.6 to 4.2 which was quite an improvement as well.
She doesn't want to go to school until her chubby cheek goes down.
She has stopped taking steroids, but her appetite is still quite good....but no more 3am meals(thank goodness!)...
We're all in good spirit.
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Susan @ 11:57 AM
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Sunday, May 06, 2007
Blessings from day 11
I was reading the book "Blessing Your Spirit", and here at day 11's blessing, these few passages kept lingering over my thoughts:
"I bless you with enough problems in life and God's rescuing you from those problems that you no longer fear problems because they become an opportunity for God to show Himself strong. I bless you with the blessing that Daniel had of living so long with God and experiencing His faithfulness so many times that when he was in the lion's den, he was not overwhelmed with fear. The animals' mouths were bound, and they could not bite him.
I bless you, with the same security that David had, to walk into the enemy's camp and leave with Saul's spear and water bottle. I bless you with experiencing your Father's intervention so often and on such a profound level that you are emotionally secure. I bless you with seeing Him do remarkable things to rescue you, so that you can go before God's people and share glory stories of what God did on your behalf, and how He activated events to rescue you from the trap of the enemy designed to destroy you.
........
I bless you with not just enjoying the emotion of release and rescue, but also translating those experiences into acts of worhip. I bless you with worshiping and glorifying God, encouraging His people, and memorializing His power after a magnificent rescue....."
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Susan @ 7:10 PM
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Thursday, May 03, 2007
Blessing your spirit
I am tremendously blessed by the concepts of this ministry. (click on today's blessing and listen to it for a few days!)
If you've been into deliverance, inner healing,etc. and found yourself saying, there's got to be a better way, then this might really interest you. A cousellor friend of mine who's highly experienced in deliverance and inner healing introduced this concept to me. She ministered to me over the phone for a few days and I'm just overwhelmed by the power of this concept. It's very contagious.
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Susan @ 8:02 PM
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Tuesday, May 01, 2007
The bone marrow test
Today started a new phase of treatment. For the next coming four weeks she'd only need to go to the hospital once a week, then a nurse will come home to give her some injections 3 times a week. Well this is the treatment plan, but anything can change any time.
The bone marrow test came out very good. There's no cancer shown in the bone marrow test...Yay! So the treatment has been very effective. The blood count had a big jump...her platelet count has been very low for a long time, usually around 20-30. She had to be given platelet just about every week, which will push the number up to over 100 for a few days then dropped back to 20 or so again. She hasn't been given platelet for maybe 2 weeks now, but the number today is 356. So that's a good thing.
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Susan @ 12:19 AM
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